Monthly Archives: May 2017 Scott and I were social media friends. We met shortly after my husband, Tom, a veteran, was diagnosed with Amyotrophic Lateral Sclerosis. We met in an ALS forum. Scott was great at sharing resources. An impactful share with me one time was how much he benefitted from having a service dog. With his encouragement, I […]  Colorful. Interesting. Outgoing. Cheerful. Sociable. Kind. Considerate. Fun loving. Laughs easily. Chally is all of these and more. Though he has ALS, ALS does not have him. He says ‘don’t sweat the small stuff…and it’s all small stuff!” Meeting Chally in person for the first time went something like this: Zipping down the […]  Brigadier General Thomas R Mikolajcik was a strong advocate for people with ALS and veterans with ALS. He was particularly strong in his advocacy for ALS to be service connected for all veterans and for the government to engage in meaningful research. In 2007 this is, in part, his testimony in front of Congress regarding […]  ALS Awareness: The Luckiest Man Alive A lucky man. A lot to live for. A tough break. Lou Gehrig. ALS. Gehrig’s name has become synonymous with Amyotrophic Lateral Sclerosis. I wish it didn’t. I wish he never had ALS. I wish when we think of him it is in the context of being one of […] |
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