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Category Archives: Caregiver In Chief

Caregiver in Chief was an unexpected role. Many years ago serious illness hit my husband hard. I was slow to come to the realization I was his caregiver. June 2010 ALS was added to the list of grievances against his body. Caregiver in Chief. It is more of who I am than not these days – it is the nature of the beast of this disease. Sharing in the blog is meant to enlighten, give insight, help others, and brighten the readers day once in a while. Carry on.

When respite calls, we should listen. Merriam-Webster dictionary defines respite this way: an interval of rest or relief. As caregivers, we know how challenging it can be to find the time to rest or have relief from our responsibilities. How does one know when they need respite? Seems like a silly question, like don’t you […]

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ALS, Amyotrophic Lateral Sclerosis, is a terminal disease. As with any diagnosis of a terminal disease anticipatory grief begins at the get go. Sometimes the grief is huge, like a king size, unmade, bed with the sheets, blankets, and pillows all piled high. Sometimes the grief is hidden, like under a smoothly made bed that […]

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Surviving is important, no doubt about it, without it we have no chance of thriving. Recently, my husband, Tom, that guy who has Amyotrophic Lateral Sclerosis, ALS, went through a difficult illness and surgery. ALS alone is challenging enough, add on sepsis and gallbladder surgery within days of each other after an umbilical hernia repair […]

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  To be a caregiver is sometimes a choice, and sometimes not a choice. Sometimes being a caregiver is a gift, and sometimes being a caregiver is a painful experience. Sometimes the caregiver experience is all of this and more: a choice, not a choice, a gift, painful, joyful, heartwarming, satisfying, frustrating, and limiting. On […]

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Every now and then a good day, and some luck, comes our way. It wasn’t too hot or too sunny today. Tom ‘husbands’ his strength well. In preparation for painting en plein air this morning he physically did almost nothing the last two days. Though his muscles are now depleted of energy after the effort […]

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