Caregiver in Chief was an unexpected role. Many years ago serious illness hit my husband hard. I was slow to come to the realization I was his caregiver. June 2010 ALS was added to the list of grievances against his body. Caregiver in Chief. It is more of who I am than not these days – it is the nature of the beast of this disease. Sharing in the blog is meant to enlighten, give insight, help others, and brighten the readers day once in a while. Carry on.
Hope is grief on the journey to healing. Reaching in to get a book off the shelf there is “Hope” upside down. Hope can be elusive, inside out, unseen, untouchable, and even crushed, until it’s not. Hope upside down is better than no hope at all.
July 10 &11, 2020 are the dates we made the last two meals of the 30 Day COVID-19 Cooking Challenge. It has taken six weeks and a few days to find time to write these last two up. They are combined into one blog piece because there is a great likelihood that it could take […]
At 9:30 a.m., this was how my day kicked into high gear. I decided to go to O’Leary’s because yesterday I tried going to another place of business that does oil changes and inspections. It was super busy, lots of people close together, none wearing masks. Leaving honored my promise to Tom to be careful […]
A long time ago when I became a caregiver, it did not occur to me that I was one or would be one for the rest of my life. At thirty-three years old that’s a lot to consume. In the beginning, each new day was all I could focus on. Get through today. Don’t think […]
When respite calls, we should listen. Merriam-Webster dictionary defines respite this way: an interval of rest or relief. As caregivers, we know how challenging it can be to find the time to rest or have relief from our responsibilities. How does one know when they need respite? Seems like a silly question, like don’t you […]
RT @austcourtney: Important webinar for veterans and caregivers, and those who support them. We’re answering alllllll the questions surroun…17 days ago
Since #als dx 3875 days ago this guy doesn’t let it get him down. From cough assist to guitar lesson this morning s… https://t.co/cEQoZ0wTbP24 days ago
#ALS #caregivers often have interrupted sleep. The bedroom is noisy & lit with tiny equipment lights. Grateful to h… https://t.co/XWHcHkoBK924 days ago
Also I wish there was an edit feature LOL I meant feat not fest #caregiver fatigue39 days ago
RT @Duke_Neurology: Our Rick Bedlack is listening to patients--and enlisting their help--in his search for possible new therapies for #ALS:…39 days ago