Category Archives: Caregiver In Chief

Caregiver in Chief was an unexpected role. Many years ago serious illness hit my husband hard. I was slow to come to the realization I was his caregiver. June 2010 ALS was added to the list of grievances against his body. Caregiver in Chief. It is more of who I am than not these days – it is the nature of the beast of this disease. Sharing in the blog is meant to enlighten, give insight, help others, and brighten the readers day once in a while. Carry on.

 Yesterday, a long time ago, he gave her flowers, from the florist. He sent them to her home, and her work. Now and then, he bought, and brought, them himself.   Later, sometime after yesterday, they bought a house together, he made her gardens of luscious flowers with scents of love filling their home.   […]

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ALS can steal and steal and steal in ways that can’t be prevented…at least not yet. It can’t steal hope, desire, and plans for the future. Tom’s Marine Corps garden. He has desired a garden with Marine Corps colors since we moved into the house 8 years ago. He loved to garden. He was our […]

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Waiting… Caregivers often do a lot of waiting. The longer we are a caregiver the more waiting we will do. We have often waited in so many healthcare waiting rooms we could write Yelp reviews like nobody’s business. We wait for appointments with the person we care for in all kinds of healthcare specialty practices […]

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