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Category Archives: Caregiver In Chief

Caregiver in Chief was an unexpected role. Many years ago serious illness hit my husband hard. I was slow to come to the realization I was his caregiver. June 2010 ALS was added to the list of grievances against his body. Caregiver in Chief. It is more of who I am than not these days – it is the nature of the beast of this disease. Sharing in the blog is meant to enlighten, give insight, help others, and brighten the readers day once in a while. Carry on.

To some ‘on a whim’ translates to ‘let’s do it’ and it happens in the snap of the finger. To us it means, oh maybe, an hour or more to prepare, get the van loaded with everything. Everything is the painting gear – easel, tubes of paint, rags, tools – Tom and the wheelchair, Maddie […]

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*Summer of 2018 Hurricane Florence is the end of the garden as I know it. A huge tree fell on the fence, broke it, and destroyed the garden. We were lucky. Our house didn’t flood, a tree didn’t crash into the house, windows didn’t break, just the fence and garden. I would share a photo […]

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There are thousands of faces of Amyotrophic Lateral Sclerosis, ALS. They say as much as 20,000 at any given time; about 4,500 are veterans. This is one of them. He has ALS, and he is a veteran.* The mornings are slow moving. His hands are still though they are not paralyzed yet. They are difficult […]

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Help. It is the essence of the disease. Help me put my socks on. Help feed me. Help me shower. Help me get out of the house. Help me breath, help me, help me, help me, help me live. It is humbling beyond measure to be the person with ALS who must ask for all […]

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Looking over the shoulder, as far as the eye can see, there are varying shades of red, yellow, blue, orange, sometimes black, and occasional bits of white. The colors are stretched out, blended together here and there, some peak so high it is impossible to see where it ends, some are low, bubbling bursts, and […]

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