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Category Archives: Veterans With ALS & Their Caregivers Resources

Veterans with ALS & Their Caregivers confront an exceptionally difficult disease 24/7. ALS, Amyotrophic Lateral Sclerosis, ALS, is a catastrophic, fatal, disease

In 2008 the VA made ALS a service connected condition. The VA is an incredible resource for veterans with ALS, and, an incredible challenge. Navigating the VA to access the benefits, care, and equipment needed in a timely manner can be frustrating, and time consuming.

It is the intent that this section of the blog help to lighten the load for these veterans and their caregivers.

Note: the following discussion is in no way related to receiving home health care, unskilled or skilled, by VHA, Veterans Health Administration. This is a discussion on Aid and Attendance as it relates to benefits, VBA, Veterans Benefits Administration. There is not a VA disability benefit that is specifically aid and attendance. Aid and attendance […]

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There are thousands of faces of Amyotrophic Lateral Sclerosis, ALS. They say as much as 20,000 at any given time; about 4,500 are veterans. This is one of them. He has ALS, and he is a veteran.* The mornings are slow moving. His hands are still though they are not paralyzed yet. They are difficult […]

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Help. It is the essence of the disease. Help me put my socks on. Help feed me. Help me shower. Help me get out of the house. Help me breath, help me, help me, help me, help me live. It is humbling beyond measure to be the person with ALS who must ask for all […]

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Brigadier General Thomas R Mikolajcik was a strong advocate for people with ALS and veterans with ALS. He was particularly strong in his advocacy for ALS to be service connected for all veterans and for the government to engage in meaningful research. In 2007 this is, in part, his testimony in front of Congress regarding […]

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  Veterans with ALS: Thinking Through VA benefits and services   The Veterans Benefit Administration (VBA) is the agency within the VA that makes service-connected disability determinations, and assigns an initial disability rating. Based on the initial rating, over the course of the disease, the VBA will likely increase that rating to higher levels of […]

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