Category Archives: Veterans With ALS & Their Caregivers Resources

Veterans with ALS & Their Caregivers confront an exceptionally difficult disease 24/7. ALS, Amyotrophic Lateral Sclerosis, ALS, is a catastrophic, fatal, disease

In 2008 the VA made ALS a service connected condition. The VA is an incredible resource for veterans with ALS, and, an incredible challenge. Navigating the VA to access the benefits, care, and equipment needed in a timely manner can be frustrating, and time consuming.

It is the intent that this section of the blog help to lighten the load for these veterans and their caregivers.

ALS can steal and steal and steal in ways that can’t be prevented…at least not yet. It can’t steal hope, desire, and plans for the future. Tom’s Marine Corps garden. He has desired a garden with Marine Corps colors since we moved into the house 8 years ago. He loved to garden. He was our […]

View full post »

The month of May is ALS Awareness Month. It is also the month  Military Caregiver are recognized. Veterans are twice as likely to get ALS than non-veterans. Tom is a veteran of the Marine Corps. He served from 1972-1975. He was diagnosed with ALS on June 21, 2010. He has a slowly progressive variant of […]

View full post »

  “Thinking Through VA Benefits and VA Care – A Resource for Veterans with ALS & Their Caregivers” is a project I have been dedicated to for the past two years. The goal is to help our veterans with ALS, and their caregivers, to avoid some of the mistakes we have made; to understand how […]

View full post »

Note: the following discussion is in no way related to receiving home health care, unskilled or skilled, by VHA, Veterans Health Administration. This is a discussion on Aid and Attendance as it relates to benefits, VBA, Veterans Benefits Administration. There is not a VA disability benefit that is specifically aid and attendance. Aid and attendance […]

View full post »

There are thousands of faces of Amyotrophic Lateral Sclerosis, ALS. They say as much as 20,000 at any given time; about 4,500 are veterans. This is one of them. He has ALS, and he is a veteran.* The mornings are slow moving. His hands are still though they are not paralyzed yet. They are difficult […]

View full post »