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Tag Archives: ALS

The photograph was taken January 18, 2020, at Federal Point, Ft. Fisher, North Carolina. This is a self-assigned photograph for an ongoing documentary of Thomas J. Ward. Tom is a veteran of the Marine Corps, 1972-1975. In June 2010 he was diagnosed with service-connected Amyotrophic Lateral Sclerosis, ALS. I have been photographing Tom’s painting and […]

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ALS, Amyotrophic Lateral Sclerosis, is a terminal disease. As with any diagnosis of a terminal disease anticipatory grief begins at the get go. Sometimes the grief is huge, like a king size, unmade, bed with the sheets, blankets, and pillows all piled high. Sometimes the grief is hidden, like under a smoothly made bed that […]

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Surviving is important, no doubt about it, without it we have no chance of thriving. Recently, my husband, Tom, that guy who has Amyotrophic Lateral Sclerosis, ALS, went through a difficult illness and surgery. ALS alone is challenging enough, add on sepsis and gallbladder surgery within days of each other after an umbilical hernia repair […]

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Note: the following discussion is in no way related to receiving home health care, unskilled or skilled, by VHA, Veterans Health Administration. This is a discussion on Aid and Attendance as it relates to benefits, VBA, Veterans Benefits Administration. There is not a VA disability benefit that is specifically aid and attendance. Aid and attendance […]

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  To be a caregiver is sometimes a choice, and sometimes not a choice. Sometimes being a caregiver is a gift, and sometimes being a caregiver is a painful experience. Sometimes the caregiver experience is all of this and more: a choice, not a choice, a gift, painful, joyful, heartwarming, satisfying, frustrating, and limiting. On […]

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