Tag Archives: ALS

To some ‘on a whim’ translates to ‘let’s do it’ and it happens in the snap of the finger. To us it means, oh maybe, an hour or more to prepare, get the van loaded with everything. Everything is the painting gear – easel, tubes of paint, rags, tools – Tom and the wheelchair, Maddie […]

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*Summer of 2018 Hurricane Florence is the end of the garden as I know it. A huge tree fell on the fence, broke it, and destroyed the garden. We were lucky. Our house didn’t flood, a tree didn’t crash into the house, windows didn’t break, just the fence and garden. I would share a photo […]

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Colorful. Interesting. Outgoing. Cheerful. Sociable. Kind. Considerate. Fun loving. Laughs easily. Chally is all of these and more. Though he has ALS, ALS does not have him. He says ‘don’t sweat the small stuff…and it’s all small stuff!”   Meeting Chally in person for the first time went something like this:   Zipping down the […]

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Brigadier General Thomas R Mikolajcik was a strong advocate for people with ALS and veterans with ALS. He was particularly strong in his advocacy for ALS to be service connected for all veterans and for the government to engage in meaningful research. In 2007 this is, in part, his testimony in front of Congress regarding […]

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Looking over the shoulder, as far as the eye can see, there are varying shades of red, yellow, blue, orange, sometimes black, and occasional bits of white. The colors are stretched out, blended together here and there, some peak so high it is impossible to see where it ends, some are low, bubbling bursts, and […]

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