Tag Archives: caregivers of veterans with ALS

ALS, Amyotrophic Lateral Sclerosis, is a terminal disease. As with any diagnosis of a terminal disease anticipatory grief begins at the get go. Sometimes the grief is huge, like a king size, unmade, bed with the sheets, blankets, and pillows all piled high. Sometimes the grief is hidden, like under a smoothly made bed that […]

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Surviving is important, no doubt about it, without it we have no chance of thriving. Recently, my husband, Tom, that guy who has Amyotrophic Lateral Sclerosis, ALS, went through a difficult illness and surgery. ALS alone is challenging enough, add on sepsis and gallbladder surgery within days of each other after an umbilical hernia repair […]

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Note: the following discussion is in no way related to receiving home health care, unskilled or skilled, by VHA, Veterans Health Administration. This is a discussion on Aid and Attendance as it relates to benefits, VBA, Veterans Benefits Administration. There is not a VA disability benefit that is specifically aid and attendance. Aid and attendance […]

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There are thousands of faces of Amyotrophic Lateral Sclerosis, ALS. They say as much as 20,000 at any given time; about 4,500 are veterans. This is one of them. He has ALS, and he is a veteran.* The mornings are slow moving. His hands are still though they are not paralyzed yet. They are difficult […]

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Colorful. Interesting. Outgoing. Cheerful. Sociable. Kind. Considerate. Fun loving. Laughs easily. Chally is all of these and more. Though he has ALS, ALS does not have him. He says ‘don’t sweat the small stuff…and it’s all small stuff!”   Meeting Chally in person for the first time went something like this:   Zipping down the […]

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