Tag Archives: caregivers of veterans with ALS

ALS can steal and steal and steal in ways that can’t be prevented…at least not yet. It can’t steal hope, desire, and plans for the future. Tom’s Marine Corps garden. He has desired a garden with Marine Corps colors since we moved into the house 8 years ago. He loved to garden. He was our […]

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  “Thinking Through VA Benefits and VA Care – A Resource for Veterans with ALS & Their Caregivers” is a project I have been dedicated to for the past two years. The goal is to help our veterans with ALS, and their caregivers, to avoid some of the mistakes we have made; to understand how […]

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ALS, Amyotrophic Lateral Sclerosis, is a terminal disease. As with any diagnosis of a terminal disease anticipatory grief begins at the get go. Sometimes the grief is huge, like a king size, unmade, bed with the sheets, blankets, and pillows all piled high. Sometimes the grief is hidden, like under a smoothly made bed that […]

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Surviving is important, no doubt about it, without it we have no chance of thriving. Recently, my husband, Tom, that guy who has Amyotrophic Lateral Sclerosis, ALS, went through a difficult illness and surgery. ALS alone is challenging enough, add on sepsis and gallbladder surgery within days of each other after an umbilical hernia repair […]

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Note: the following discussion is in no way related to receiving home health care, unskilled or skilled, by VHA, Veterans Health Administration. This is a discussion on Aid and Attendance as it relates to benefits, VBA, Veterans Benefits Administration. There is not a VA disability benefit that is specifically aid and attendance. Aid and attendance […]

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