Hope is grief on the journey to healing. Reaching in to get a book off the shelf there is “Hope” upside down. Hope can be elusive, inside out, unseen, untouchable, and even crushed, until it’s not. Hope upside down is better than no hope at all.
ALS, Amyotrophic Lateral Sclerosis, is a terminal disease. As with any diagnosis of a terminal disease anticipatory grief begins at the get go. Sometimes the grief is huge, like a king size, unmade, bed with the sheets, blankets, and pillows all piled high. Sometimes the grief is hidden, like under a smoothly made bed that […]
Looking over the shoulder, as far as the eye can see, there are varying shades of red, yellow, blue, orange, sometimes black, and occasional bits of white. The colors are stretched out, blended together here and there, some peak so high it is impossible to see where it ends, some are low, bubbling bursts, and […]
RT @austcourtney: Important webinar for veterans and caregivers, and those who support them. We’re answering alllllll the questions surroun…18 days ago
Since #als dx 3875 days ago this guy doesn’t let it get him down. From cough assist to guitar lesson this morning s… https://t.co/cEQoZ0wTbP25 days ago
#ALS #caregivers often have interrupted sleep. The bedroom is noisy & lit with tiny equipment lights. Grateful to h… https://t.co/XWHcHkoBK925 days ago
Also I wish there was an edit feature LOL I meant feat not fest #caregiver fatigue39 days ago
RT @Duke_Neurology: Our Rick Bedlack is listening to patients--and enlisting their help--in his search for possible new therapies for #ALS:…40 days ago