Masthead header

Tag Archives: Lou Gehrigs Disease

From the day of diagnosis to May 1, 2018, this is how many days Amyotrophic Lateral Sclerosis, ALS, has been in our life. It is a lot of days. It is a long time. It feels like yesterday. It feels like time is on speed. The journey to a definitive diagnosis was a long time […]

View full post »

Help. It is the essence of the disease. Help me put my socks on. Help feed me. Help me shower. Help me get out of the house. Help me breath, help me, help me, help me, help me live. It is humbling beyond measure to be the person with ALS who must ask for all […]

View full post »